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Spesific Conditions.

 

 

Glaucoma Forum

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Glaucoma Forum: Click here to subscribe

Description Glaucoma.
The Glaucoma Forum e-group is facilitated and moderated by the International Glaucoma Association, 108c Warner Road, London, SE5 9HQ UK and exists to provide an opportunity for all health care professionals with an interest in glaucoma to participate in interdisciplinary and international discussion of all aspects of glaucoma including its detection and management to help develop a better understanding of the condition and to promote knowledge with the aim of helping to prevent glaucoma blindness throughout the world.
Special Instructions Leave the subject line and body clear.
Glaucoma Forum Website  

 

CMV

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CMV: Click here to subscribe

Description Cytomegalovirus.
CMV list-Support for families involved with Cytomegalovirus, The purpose of the CMV list is to create a common ground - for parents and caregivers of children with congenital CMV, their caretakers, therapists, doctors and nurses who work with children, those with CMV, and those researching ways to conquer CMV. CMV (Cytomegalovirus) is a herpes type virus that affects young and old alike. CMV's complications range from unnoticed to devastating. This list is also a forum to learn from each other, share our frustrations and rejoice in our triumphs. This list will be a place to discuss any and all of the complications of CMV. To list a few: intracranial calcification, Cerebral Palsy, seizure disorder, deaf, visually impaired, profound delays and MR, microcephallic, mal-absorption difficulties, feeding difficulties, CMV retinitis. There are many other handicaps associated to CMV, all of which are open for discussion. Here we can discuss children's accomplishments and defeats, knowing that the audience includes others who know what we are going through. We can also get some idea of how others address specific problems/concerns with feeding, learning, schools, medical resources, techniques and equipment, as well as describing the problems to friends and family or just coping.
Special Instructions. In the body of your message type: SUBSCRIBE CMV your email

 

DB_Intervenor

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DB_Intervenor: Click here to subscribe

Description DM.
DB_Intervenor mailing list, The DB_Intervenor list will be specifically for the needs of Deafblind children. And will be open to parents, Intervenors, and professionals. It will take on an open iscussion format, and will also have a question/answer format where people working in the field of deafblindness will be available to respond to specific questions. The title is DB_Intervenor. Remember parents are a deafblind child's first intervenor.
Special Instructions. In the ssubject line type: subscribe

 

Kera Net

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Kera Net: Click here to subscribe

Description Cornea,
Cornea and external disease discussion list.
Special Instructions Leave the subject line and body clear.

 

DeafBlnd

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DeafBlnd: Click here to subscribe

Description General discussion.
Discussion of issues affecting people who are both deaf and blind.
Special Instructions Leave the subject line clear, and in the body of your message type: SUBSCRIBE deafblnd firstname lastname

 

Choroideremia

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Choroideremia: Click here to subscribe

Description Choroideremia.
Choroideremia was created to facilitate discussion and the dissemination of information between people who have been diagnosed with, or who are interested in, the genetic degenerative eye disease Choroideremia. Choroideremia, or CHM, is also known by the name Tapetechoroidal Dystrophy, or TCD.Choroideremia is a genetic eye disease caused by a genetic defect located at Xq21.2 and those afflicted with the eye disease will initially be night blind, and their retina will begin to deteriorate beginning in the periphera and tunnel to complete blindness. Appropriate topics of discussion on the Choroideremia list are those concerning Choroideremia, its treatment, life experiences, research information, and other personal and technical information that has anything to do with the disease.
Special Instructions Leave the subject line clear, and in the body of your message type: subscribe Choroideremia

 

Home World

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home-world: Click here to subscribe

Description Vi and Autism.
This is a list for people who are interested in are related to or have an autistic spectrum disorder, or who are autistic and vision impaired.
Special Instructions. Leave the subject line and body clear.

Home-world Website

 

LHON

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LHON: Click here to subscribe

Description LHON.
LHON is a support and information mailing list dedicated to the discussion of Leber's Hereditary Optic Neuropathy. This genetic complaint is characterised by a relatively sudden, bilateral loss of vision and can be very hard to diagnose. LHON has been established up to focus the thoughts and feelings of those, or relatives of those, who are suffering from LHON.
Special Instructions Leave the subject line and in the body of your message type: SUBSCRIBE LHON firstname lastname.

 

Macular Degeneration

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MD: Click here to subscribe

Description MD.
The MACULAR-DEGENERATION list exists in order to facillitate the exchange of helpful tips, experiences, and mutual encouragement amongst persons experiencing macular degeneration. 
Special Instructions Leave the subject line and in the body of your message type: SUB MACULAR-DEGENERATION firstname lastname

 

Premature And Blind
Support

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PrematureAndBlindSupport: Click here to subscribe

Description rlf/rop
This is a support group for those who were born premature, and blinded as a result of receiving excessive oxygen in the incubator. This condition is called rlf/rop. This group was originally formed on evoice.
Special Instructions Leave the subject line and body clear.
Premature/Blind Website  

 

R-Blastoma

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R-Blastoma: Click here to subscribe

Description Blastoma.
R-BLASTOMA is an unmoderated discussion list for persons with Retinoblastoma, their loved ones, family, and friends. It is also a forum where patients, family, and friends can interact with researchers and physicians, to discuss clinical and nonclinical issues and advances pertaining to retinoblastoma. Topics of discussion include: patient experiences, psychosocial issues, new research, clinical trials, alternative therapies and discussions of current treatment practices.
Special Instructions Leave the subject line clear, and in the body of your message type: SUBSCRIBE R-BLASTOMA

 

Retinal Detachment

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Retinal Detachment: Click here to subscribe

Description Retinal Detachment.
Discussion and support group for people who have or may develop retinal detachment, their family & friends, as well as people with an interest in RD or blindness.
Special Instructions Leave the subject line and body clear.
Retinal Detachment Website  

 

RET-PIG

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RET-PIG: Click here to subscribe

Description Retinitis Pigmentosa
RET-PIG is an open forum for discussions, announcements, and questions related to the retinitis pigmentosa and allied disorders. Subscribers to the list include molecular biologists, clinicians, (medical or biology) students, patients and other individuals interested in Retinitis Pigmentosa.
Special Instructions Leave the subject line clear, and in the body of your message type: SUBSCRIBE RET-PIG

 

RPLIST

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RPLIST: Click here to subscribe

Description Retinal Degeneration.
RP LIST is open to discussions on all topics of interest to people
     with retinal degenerations such as retinitis pigmentosa (RP),
     macular degeneration, and others. This includes daily living with
     low vision, mobility and reading aids, psychological problems,
     current research, and much more. The list acts both as a support
     group and an information exchange forum. Medical discussions are
     appropriate but are not the main focus of the list.
Special Instructions Leave the subject line clear, and in the body of your message type: SUBSCRIBE RPLIST firstname lastname.
RPLIST web site  

 

RPLISTE-FR

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RPLISTE-FR: Click here to subscribe

Description Retinal Degeneration
RPLISTE-FR Groupe de discussion sur les degenerescences retiniennes. The RPliste-fr list has the same purpose as RPlist, but uses the French language.
Special Instructions Leave the subject line clear, and in the body of your message type: SUBSCRIBE RPLISTE-FR.

 

RP Friends

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rp_friends: Click here to subscribe

Description RP.
The RP-Friends Mailing List is a discussion group where people whose lives have been touched by Retinitis Pigmentosa, an often blinding eye disorder, gather for friendship and support.

RP-Friends was formed to accommodate friendly and frivolous messages. For more serious discussions about Retinitis Pigmentosa, see RPLIST

Special Instructions Leave the subject line and body clear.
RP Friends Website  

 

RP Support

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rp_support: Click here to subscribe

Description RP.
This is an open forum support group for Retinitis Pigmentosa, Macular Degeneration, and other degenerative eye diseases.   It has been established for patients, family, educators and medical professionals interested in sharing information and/or support for persons affected by this rare disorder.
Special Instructions Leave the subject line and body clear.
RP Support Website  

 

Retinitis Pigmentosa

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Retinitis Pigmentosa: Click here to subscribe

Description Retinitis Pigmentosa
A support group mailing list for Retinitis Pigmentosa, Macular Degeneration, and other retinal   degenerative eye diseases. It has been established for patients, family, educators and medical professionals interested in sharing information and/or support for persons affected by this rare disorder.  
Special Instructions Leave the subject line and body clear.
Retinitis Pigmentosa Website  

 

RP News

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RP News: Click here to subscribe

Description Retinitis Pigmentosa
Newsletter: RP-News - News items directly related to Retinitis Pigmentosa with no other postings allowed.   This list will keep you informed without any extra messages.
Special Instructions Leave the subject line and body clear.
RP News Website  

 

Ushers List

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Ushers List: Click here to subscribe

Description Ushers.
A list intended for the use of individuals who have Usher Syndrome, their family and friends, and professionals working either with persons with Usher or involved in Usher-related research.
Special Instructions Leave the subject line and body clear.
Ushers List Website  

 

Uveitis/OID Support

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Uveitis/OID Support: Click here to subscribe

Description Uveitis.
The Uveitis/OID Support Group is a patient education and mutual support resource founded in 1996 by faculty, staff, and patients of the Ocular Immunology & Uveitis Service at Massachusetts Eye and Ear Infirmary in Boston. Our mission is to educate patients and their loved ones about ocular inflammatory disease and to facilitate the exchange of information, emotional support, and mutual aid between members. Destructive inflammatory diseases of the eye such as uveitis are the third leading cause of preventable blindness worldwide. Anyone living with uveitis or other form of ocular inflammatory disease is welcome to join us. This free online resource is maintained by volunteer members of the Support Group and is an extension of Uveitis.org   We are indebted to our faculty sponsor, C. Stephen Foster, MD, for his unflinching support of our mission and activities. No medical advice is given here, ever. Uveitis is a potentially blinding illness.   We recommend that patients with uveitis establish a relationship with an ophthalmologist experienced in treating ocular inflammatory disease and consult with that physician before making any diagnostic, treatment, or other healthcare decisions. Both this and our parent site abide by the HONcode principles for medical and health web sites. You are welcome to browse here and at our parent site for educational resources (FILES and BOOKMARKS.) If you think you may be interested in joining us online, please take a moment to review our Uveitis membership guidelines. You will find instructions about how to register at the bottom of the Guidelines file.
Special Instructions Leave the subject line and body clear.
Uveitis Support Website  

 

Vision of Hope

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VisionofHope: Click here to subscribe

Description RP. Ushers etc.
This is a support group and mailing list for people whose lives have been affected by Retinitis Pigmentosa, Ushers and other eye diseases. It has been established for patients, family, educators and medical professionals interested in sharing information and support for people affected by these   diseases. There are chapters of this Group available in different parts of the USA
Contact micjacks@bellsouth.net
Or bpad@uswest.net
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VisionofHope Website  

 

VOCF Family Network

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VOCF Family Network: Click here to subscribe

Description VOCF.
E-mail newsletter service for families affected by Ocular Albinism and other forms of hereditary childhood blindness and vision disorders.
Special Instructions Leave the subject line and body clear.
VOCF Family Network Website  

 

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